Caregivers
Your first step after diagnosis is to take time to talk. If you will be taking over responsibilities from your family member, make sure you know what is involved. Make a list of bills which need to be paid monthly, get computer passwords, write down the kids’ schedules, insurance information – anything you will need in the next few weeks.
You can serve as your loved one’s advocate at physician appointments. Start a notebook for paperwork. Make a list of physician addresses and phone numbers. Set up a section for each physician treating your family member. Include notes from appointments, questions you have for the physicians and notes from phone calls – including who you spoke with. Add a billing section and include physicians’ statements, along with the amounts paid by insurance and personal payments.
Give your loved one a break to spend time with friends, go for a walk or just read a book. Everyone needs some alone time.
Taking care of yourself is important. Spend time with friends, enjoy a favorite hobby or watch a movie – whatever you enjoy. Use a friend as a support person for yourself, sharing thoughts and feelings or attend a caregiver support group. If you need help with your responsibilities, it’s okay to accept help from friends and family.
One final word – sharing your time, love and support is a gift you are giving your loved one.